Care for others

Well-being, confidence and experience of paid and unpaid carers

Why understand the needs of carers?

The well-being, confidence and experience of paid and unpaid carers is being recognised increasingly as an important issue.  These measures have been developed from patient-reported measures to reflect the needs of carers and those they care for.

Variants of these measures have been used in care homes, home care and by family carers.  All use the standard R-Outcomes format of four question items with four response options each.

Benson T et al. A Survey of Carers and Cared For. Poster at PROMs Conference , University of Birmingham June 2018.

“R-Outcomes measures are now KPIs for several of our new models of care.”

Phil MartinezWest Hampshire CCG

What we can measure

Cared For

This measure captures the amount of help needed by the person being cared for, including unpredictable needs and behaviour problems. (PROM, 28 words, 9 years)


Carer Wellbeing

Carer well-being measures how being a carer impacts their quality of life. (PROM, 31 words, 9 years)

Carer Confidence

Carer confidence measures people’s perception of their capability in the carer role. (PROM, 29 words, 8 years)

Shared Decisions

Shared decisions focus on the carer’s perception of being involved in decisions that affect them and the person they care for. (PROM, 28 words, 9 years)

Carer Experience (howRwe)

Carer experience focuses on the support carers receive from the health and care services. (PREM, 19 words, 7 years)

Service Integration

Service integration measures how well services collaborate to help carers and the people they care for. (PREM, 30 words, 8 years)